Friday, March 11, 2016

The worst day of my life.

Some might think it was the day my son went to Heaven, but really, in my mind anyway, it was the day I heard the words "no curative treatment".

March 11, 2013. Silas had a follow up appointment for a CT scan to see if he was healing well from his amazing surgery to remove the cancer from his liver and repair his vena cava. It had been a month since surgery. I was nervous because his blood counts indicated that his cancer may be spreading, but I as assured by the doctors that the numbers were probably just off because of the surgery and I should't worry, they would come  back down in time.

Silas had a cold, several of us did. I was scared to death that they would not let him have the CT scan because of the cold, they had been planning to sedate him, but I assured them that he could handle doing it awake. It took a trial run and some convincing but I talked them into letting him do it awake. They had already decided they wouldn't put him to sleep, but they were very close to saying they were not going to do it at all. He did great, he went through the scan like a pro with no problems at all.

While I was with Silas, Archie was hanging out down stairs in the hospital with the other three boys.

After the CT scan we went up a couple of floors to the "Liver" floor for our follow up with the Surgeon. It seemed like we were waiting forever and we were getting hungry. Silas had a snotty nose but he was happy and hyper. He was naming the internal organs on a poster in the office when they came in, the Surgeon, the Liver Specialist, and the Liver Resident. I wasn't expecting to see all of them.

I was expecting them to tell me that he was healing well and that it was time to schedule his cryosurgery where they would freeze of the last spot of what they believed to be cancer. Instead I was punched in the gut. They told me that he had 4 new liver tumors and AT LEAST 10 new cancer spots on his lungs. I was floored. My head was spinning. The Doctor said they had "no curative treatment" left at this point  but that he had already talked with our regular Oncologist in Savannah and he had some ideas for some chemo options. I was not able to process what was being said, I asked if the chemo options worked if the cryosurgery would still be an option. The Surgeon hesitated and said perhaps, but looking back, I think he realized I did not understand and was just trying to be optimistic. They left the room.

I tried desperately to remember everything that was said so that I could tell Archie. The Oncologist came in and talked with me for just a moment. I really don't remember what he said. I just wanted to get downstairs to Archie and then call our regular Oncologist. Silas was hyper and energetic and ready to go, and all I could think was "I can't cry, I don't want to scare him".

We headed downstairs where we met Archie, I didn't have to tell him anything, the Surgeon had run into him in the hallway and told him everything. I choked back tears. Archie took the boys to go get the van out of the parking garage and I called our Oncologist. He had a lot of information and was trying to answer my questions. I heard him say "maybe we can give him 6-12 months if we try...." Finally I just said "can we just come see you?" Since we were in Atlanta we decided that going to Savannah the next day made the most sense, I scheduled the appointment and  by then Archie had pulled up to pick me up. We put on a movie in the van for the boys and sat in the front seat and sobbed quietly.

We had planned to do some shopping and make the most of our day in Atlanta, but the news that, barring a miracle, our little boy was going to die crushed us. We turned up the volume on the boys movie kinda loud so they couldn't hear us talking. I called my mom and told her the news. It was one of the hardest things I've ever had to do. I made a couple more phone calls on the 3.5 hour drive home. We prayed and praised the Lord. We decided to stop and visit Bass Pro and the boys had a blast. Archie and I just watched Silas and tried to hold back the tears. He was so happy and energetic, how could he be so sick?

That night we told Silas, and then his brothers the news. Silas' cancer was back and we believed he was going to go to Heaven soon. Silas was thrilled and excited about this news. His brothers were as heart broken as we were. For Silas it meant an end to the pain and suffering, to the needle sticks, medicines, chemotherapy, hospital stays, scans, etc. etc. For us, it meant not having Silas with us any more.

Looking back on this day, I can see God's arms around us. I felt as though He cried with us, not saying anything, just holding us. Psalm 34:18a says "The LORD is near those who have a broken heart..." This is true. Though I did not hear God speak to me that day, I know He was with us.

The LORD is still with us. He has carried us through the pain of losing Silas. I use the term "losing Silas" sometimes I say we "lost Silas", but then I always remember a conversation I had with the Lord when Silas was first diagnosed. I cried out to the Lord and said "I don't want to lose my baby!!!" And He answered back, so clearly, but not in an audible voice "You can't lose him, he will always be safe with Me". Silas is not lost to me, I know exactly where he is and we will be reunited one day. That day seems so far off right now, but I think when the day of our reunion comes, all the time that has passed between May 25, 2013 and that day, will seem like no more than the blink of an eye.

So today is the anniversary of the worst day of my life, but with God, I know all of the bad days will seem like nothing compared to the glory that will be revealed. God is good, His mercy endures forever, all His plans are good, and He is worthy to be praised!


3 comments:

Anne said...

I read this through tears. It still seems unfathomable that he isn't here. Much love to you, my friend.

Unknown said...

Jessica, I only know you through your Facebook page, but I want you to know that Silas made such a huge impact on me. His faith, your faith, and your obvious love for the Lord continues to inspire me. He had more faith at 4 years old than some people have in a lifetime. I cannot imagine the pain that you went through watching your child suffer from a horrible disease, but you are so right - Silas isn't lost! He's in the Savior's arms, waiting for that blessed day when you will reunite with him forever.

Our local radio station was doing the St. Jude's Cancer Radiothon today. I hadn't been able to afford it before, but today I pledged to become a Partner in Hope by contributing monthly to St. Judes. My pledge was in honor of your son and all the other brave little warriors that continue to fight. ((Hugs!))

Mandy said...

Even though this was written in 3-11-16 and it's now 3-11-2020 I some how came across it on FB. Silas and your family's story still touches my heart. I see GOLD and he is one of the children I think of. Prayers for y'all and Until we all see Silas again continue to share his story and his love for Jesus.